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How It Got Started

The Zebra

It was February 2021 when I got the news. My 3 year old son was a zebra. 

Not an actual zebra, but of a rare breed. In medicine, there is a saying- If you hear hoofbeats, think horse not zebra.  He had been diagnosed with a rare genetic disease, KIF1A-Associated Neurological Disorder (KAND).

And just like that- I was birthed into a new way of life. Here I share my story, tips & tricks, and hopefully some laughs too. This is my creative outlet, passion project, and window into the soul of a first time mom turned coffee-driven advocate. My dream is that, with your help, this will become a one-stop shop of resources and inspiration for mom's who walk a path similar to mine. 

If you've made it this far- thank you for spending your precious time learning more about my journey. No one is promised tomorrow & I am eternally grateful.