February 28, 2022
Help Hope Live
We asked mom Kassondra Lambert to tell us about her journey with Ethan’s rare diagnosis—and how she turns hardship into hope by sharing her experiences and resources with other families.
April 27, 2022
Last year, I found myself emotionally and physically isolated as the primary caretaker of my son. In caring for him, I lost track of the things I should have been doing to take myself. But, through enduring this, I gained some perspective and learned some lessons about what we can expect to go through as caretakers of children with a rare disease.
May 6, 2022
Interesting Humans Podcast
When Kassondra and Will Lambert’s son Ethan was about two he was diagnosed with an extremely rare genetic disorder referred to as KAND. The couple had noticed early in their son’s life that he wasn’t progressing physically as expected. Ethan was unable to hold a bottle himself and wasn’t starting to verbalize took them more than two years to finally get a diagnosis of this disease so rare only about 300 people worldwide are affected.
June 8, 2022
Rare Revolution Magazine
Through her own experiences of fundraising for vital medical expenses, Kassondra Lambert founded The Striped Stable to help other families navigate the world of medical fundraising. She encourages others in the rare community to tell their story in the hope of effecting far-reaching change